“Fun Cards” that Nail what it’s like to be an EB Parent

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This kitty is EVERYTHING 💕 Nicky tells me the k

The thing with EB is that it’s so individual. Ev

Happy Happy Happy Birthday 🎊 to Nicky’s dad (

Nicky doesn’t like it too much, but I think he’s adorable as a cartoon!!! ❤️❤️❤️

From the moment I came home from the hospital with

I haven’t posted pictures of Nicky’s wounds in

Connor really likes the kitties! I don’t often p

Accepting a situation, a condition, and in our cas

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Hi!

I'm Silvia.

I am the mother of 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.Read more...

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“Fun Cards” that Nail what it’s like to be an EB Parent

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