When I was a 15 years old, in late 1979, I started a diary that changed my life. I was a very shy teenager, I had friends, but I was neither popular, nor confident, so I used this medium to vent in good ways and bad ways and it helped me understand myself. Let’s face it, being a teenager is hard. I see it daily with my 12 year old and he’s not even a teenager yet. My diary changed myRead More →

I was speaking to a dear relative of mine a few weeks ago, and after I told her about Nicky’s antibodies issues that very well might prevent any cure that comes his way because his body will automatically reject it by “fighting” the new collagen that’s introduced, she asked me quite curiously how I can still have hope. My answer was swift. “I just can’t give up”, I told her. Nonetheless, it’s hard to have hope when there seems to beRead More →

Finally… yes, finally someone makes a movie from a book about survival I can sink my teeth into. I knew when the movie “Wild” came out that I wanted to see it. I rarely go to the movies anymore (once or twice a year at best) so as soon as it was available on Netflix it was sitting in my mailbox. I will preface this by saying that this is exactly the kind of book I live for-stories of survival.Read More →

This past Sunday, around 6pm, Nicky decided to come sit on the couch where we usually change bandages in front of the TV. I told him that I still had to finish dinner and clean up, but he said he didn’t mind, he wanted his bandages changed BAD. So bad in fact that he told me he wished we could do his ‘whole body’. I was a little stunned by this. Usually Nicky is not exactly keen on changing bandages,Read More →