I was reminded recently of how lucky I am that my personal beliefs are rooted in direct personal experiences rather than bigotry, hatred, hearsay & ignorance. Through the storms of my life I kept an open mind and learned things and lessons so many are not privy of. That’s why I like to tell my stories, so that individuals can take heed of my experiences and learn a few things about life without actually going through hell, but it’s sad to see many refuse to listen and are are driven by hate. I constantly see posts that include insults, lies, bad mouthing and more. It usually makes me more sad than angry, but one post in particular the other day truly upset me. The post in question relayed the story of a little girl being taught the lesson that all homeless people want and need is basically “all your money”.Read More →

I remember vividly being pregnant with my first baby, Alex. Finally my dream of becoming a mom was coming true. I waited an elated 9 months for his arrival, and on the day after he was due we found out he had died in utero. He was stillborn 2 days later. Seven months after that unthinkable loss I miscarried a baby girl at 8 weeks. Thirteen months after that I finally held Nicky. He was a bundle of warmth that felt like heaven. After that initial bliss we found out he had EB, and everything else was a blur. For the longest time I felt lower than low. I am not sure I felt ashamed per se, but I was definitely distressed about my story, I felt distraught, even tormented by the memories of holding my dead newborn and surely poking blisters on my precious new baby did not help myRead More →

Yesterday morning I had a Doctor appointment and as I was sitting in the waiting area I struck up a conversation with an older gentleman looking lonely. I normally don’t struck up conversations with strangers very easily, but he looked friendly with his fluffy white mustache, and I love senior citizens as a whole, so we started talking about the desert being in bloom and gardening. When I started telling him about my 86 year old dad and his garden in Italy and about my grandparents’ mini-farm they had in the 60s and 70s he got really silent and then blurted out, without warning, how he would “never” go to Europe because of the “muslim” situation. To be honest, I was a little baffled at this comment. I’ve been in Europe as recently as this past summer and I felt actually safer there than I am here all things considered. IRead More →

I am a very spiritual person. I grew up catholic and I have attended service at many different churches from many different denominations, mostly to satisfy my curiosity, so I am very well aware of how incredibly sensitive this issue of religion is. Your beliefs are important and they should never be belittled nor should you ever be questioned about them.  It’s because of this that I am just very surprised when people start “bragging” how they prayed, and their illness either vastly improved or even disappeared. Please don’t misunderstand me. I do not think it’s bad to be thankful, nor I think it’s impossible for any prayer to get unanswered. As a matter of fact, gratefulness is incredibly important and I do believe in miracles. What I have an issue is when people in general point fingers at others, and especially at parents of children with special needs orRead More →

It seems to me that every time I turn on the news lately there is someone telling me I should fear something. I ought to fear this, be angry at that and hate the other. I also noticed that the people that buy into this way of thinking are extremely depressed, suffer from anxiety or are somewhat… how shall I say this? A bit egotistical. Everyone is out to “get them”. Just this morning I read the news of a 16 year old boy with RDEB like Nicky that passed away. Let me tell you something. It would take a LOT for me to take the advice of a newscast full of notions of fear, anger and hatred, when the scariest thing that could ever happen to me is staring in my face day in and day out. I refuse this notion. If there is anything that my children haveRead More →

There are many versions of ‘Beauty and the Beast’, but the main story remains the same. A hideous beast and a beautiful girl fall in love, and when they do it turns out the beast wasn’t a beast at all, but a handsome prince. We learn that the reason the prince was turned into a beast and every single one of the prince’s servants turned into  inanimate objects was because an enchantress, disguised as an old woman, came to his castle seeking shelter on a stormy night. When the prince refused to give her shelter, she revealed her true self and cursed the man for his shallowness by transforming him into a beast. Only true love could turn the prince back to normal. I find it interesting how a simple refusal to give a stranger shelter would result in such a horrible punishment, but I find that in our society today over-reacting onRead More →