A Mother's Journey
My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.
I know this is not a popular stance, or maybe it is, but if living with a child (he may be 18 now, but he’s still my child and will always be-and he will always live with me!) with a rare form of Epidermolysis Bullosa has taught me, is that...
I grew up in a country where Health Care is a right, not a privilege. I grew up in a country where my grandma, who suffered from breast cancer for 13 years, was hospitalized numerous times, endured a double mastectomy, chemo, radiation and more, but was not driven to bankruptcy...
I just updated Nicky’s Caringbridge Blog this morning…. Thank you for your support and thank you for allowing me to vent. http://www.caringbridge.org/visit/nickyz MORE NEWS! The Audiobook of Losing Alex will be available shortly. It’s so exciting for me! Also, I was able to lower the cost of my book Butterfly...
From My Book “Butterfly Child” Love & Light, Post Views: 4,507
My new giveaway for my book “Butterfly Child” is now live! Enter for a chance to one 1 of 2 Autographed copies! Autographed by both Nicky and I nonetheless!! Here’s the link! –> https://www.goodreads.com/giveaway/show/150684-butterfly-child Thank you so much for your support… and if you have already a copy, please consider leaving...
As Wayne Dyer says, “Some people exude negative energy because of their lifestyle, friends and thinking habits. They could be sending it out all the time or just part of the time. To the degree that you are sensitive and porous, being around these people will actually make you sick.”...
This is part 8 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising my son with RDEB (Recessive Dystrophic Epidermolysis Bullosa) called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was going...
As I posted yesterday, wound pics generate a barrage of negative comments on Facebook, they usually end up being reported and deleted, which is why I don’t post them there anymore. It’s just not worth getting banned over them when I can just post them here. This is EB-more specifically,...
I came across a reddit page yesterday that deeply disgusted and disturbed me. The title of the post was this: “If I found out my child had that (EB), I would kill them in their sleep.” This is sadly not the first time (and it won’t be my last) where...
Be Healthy, Stay Healthy You have one body and it has to last you as long as possible, so treat it well. Vegetables, fruits? Yes! Your body loves those. Get your move on as well. Don’t have time to exercise? Just park as far away as possible, take the stairs,...
While I was born and grew up in Italy until I was nearly 18, I’ve lived in the United States almost 2/3 of my life, and yet, there is something magical about Italy I can’t shake off. Something about Italy and Italians and they way they think, eat and do...
I was touching Nicky’s new skin on his foot the other night while changing bandages, and while it looked great and normal, just touching it I could tell that a tiny little movement across his skin with my finger would tear it right off. The other foot was plagued with...
It is also available on iTunes! Love, Hugs and EB Awareness! Smooches, Check Out Caregiving Podcasts at Blog Talk Radio with Butterfly Talk on BlogTalkRadio Post Views: 3,102
This is part 7 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising my son with RDEB (Recessive Dystrophic Epidermolysis Bullosa) called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was...
