Blog
July 16, 2015
Narration about my book “Butterfly Child”
Just before my 30th birthday I found out I was pregnant with my first baby. All my friends were already mothers and I had wanted a baby for so long that this pregnancy ended up being something surreal. I walked on air for the entire 9 months, it truly was...
July 12, 2015
New CaringBridge Blog & Butterfly Talk
A quick note! I just updated Nicky’s blog at CaringBridge… I talk about a lot of different things going on with Nicky right now. Here’s the link! http://www.caringbridge.org/visit/nickyz/journal/ Also… I have some great guests coming up for August and September, but since this month is so crazy for me, I decided that on...
July 9, 2015
Nicky’s Life Part 6
This is part 6 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising my son with RDEB (Recessive Dystrophic Epidermolysis Bullosa) called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was...
July 8, 2015
Thank You & Happy Summer!!!
Love seeing all your pics reading #butterflychild! It’s the perfect summer read! Thank you SO MUCH for sharing these Cristina Battaglin, Dianna Floyd & Molly Holm!! Please share yours with me~! Thank you and Happy Summer!! Post Views: 3,180
July 5, 2015
When I Can’t Explain, I Show.
It has become apparent over the years that 9 times out of 10, when Nicky tells me his foot is really “bad”, I need to brace myself. This is what I braced myself for a couple of weeks ago… After I took off the bandages, big areas of skin just...
June 11, 2015
Nicky’s Life Part 5
This is part 5 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was going on at...
June 8, 2015
EB Still Surprises Me.
One would think that after 18+ years, nothing about EB would surprise me anymore. Well, it does. EB still manages to shock us at what it can do and how it manifests itself. Last night as I was taking off a bandage from Nicky’s upper left arm, it looked as...
June 4, 2015
Nicky’s Life Part 4
This is part 4 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was going on at...
June 2, 2015
Everyone Matters
Sometime ago I decided not to be angry anymore. I didn’t want to be angry at EB and what it was doing to my son. I was done blowing my lid over things I had no control over. I was tired of being depressed all the time. I was tired of...
May 23, 2015
Nicky’s Life Part 3
On the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child, I am posting a few images from Nicky’s life and commenting on either what was going on at the time or explaining things about the picture per se. This “picture...
May 21, 2015
My Top 10 Dalai Lama Quotes
I’ve been a quote freak since I met an inspirational young woman on a flight to Italy in 1993. Quotes have helped me so much during my own life to deal with things I even share them on my Facebook Page called “Sleeping Angel“. The Dalai Lama is one of...