A Mother's Journey

Hi! I'm Silvia

I am the mother of 3 boys, 2 in heaven, 1 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who was born with the Recessive Dystrophic form of Epidermolysis Bullosa. He died in late 2021. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more. I hope my life and my struggles through grief and special need parenting inspire you to enjoy each moment.

Blog / Butterly Talk YouTube Show · May 6, 2020

Butterfly Talk Episode 1 – The Bravery of patients with Epidermolysis Bullosa

Butterfly Talk is back!

I used to have the “Butterfly Talk” podcast a while back, where I mostly interviewed people form the EB community (https://www.blogtalkradio.com/butterflytalk)…
This new version is a YouTube show where I will talk mom to mom about different aspects of coping and celebrating our amazing kids. It will be once or Twice a month from now on.