October 28, 2020

10 Things this EB Mom Wants You to Know…

It’s EB Awareness week! Every year from October 25 to 31st (the last week of October) is reserved to help raise awareness for Epidermolysis Bullosa, my son’s rare skin disorder. Here’s 10 things this EB mom wants you to know… 1. Yes, it might looks like we have it all...

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October 2, 2020

Why Pregnancy Loss Awareness is so Important

Just yesterday Model/Author Chrissy Teigen posted something on her Instagram account that blew me away. Her loss. Her Pregnancy Loss. The pictures were so devastating to look at, not because of the images per se, but for the memories they brought back in my mind from my loss, long ago....

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September 23, 2020

RIP Ruth

The passing of Ruth Bader Ginsburg got me blogging again. She was one of those pioneers for women that will be hard to replace, most especially on the Supreme Court. For what it seems like right now, her possible replacement is against everything she was for, which is sobering. It’s...

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July 29, 2020

This is What I Believe…

I came across this quote a while back and it kinda just “hit me” in the gut. “The most destructive thing I’ve ever done is believe someone else’s opinion of me” I’ve been doing a lot of thinking about this quote… How many times, in our lives, people put us...

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July 27, 2020

What I’m Into {Summer 2020 Edition}

What I am watching I have to be honest, the last thing I wanted to do this summer was sitting in front of the TV and watch endless shows. I should be in Italy right now visiting my family. I was supposed to take my kids camping, and I wanted...

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July 23, 2020

My Interview with the Mark White Show!

The Mark White Show · The MFH Good Deed Segment: Epidermolysis Bullosa Awareness with Silvia Corradin A Big Thank YOU to Mark White for Helping us spread EB Awareness! Love & Light, Post Views: 1,995

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July 15, 2020

On Judgemental People…

Just recently the EB community lost two RDEB teenage souls and my heart broke. This is the same exact diagnose as my son’s, so when this happens I always wonder when will that happen for him. Tomorrow? Next year? 5? 10? The future is scary. It’s unthinkable. It’s something I...

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July 5, 2020

Nicky’s Life Part 76

November 2014 – What an awesome memory!! We met Nick Vujicic in Ventura during one of his events and it was amazing. Nick had invited Nicky after he saw him on a news piece. What an inspiration! More of Nicky’s life in the book: http://www.butterflychildamothersjourney.com/ Post Views: 1,607

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