A Mother's Journey
My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.
It’s EB Awareness week! Every year from October 25 to 31st (the last week of October) is reserved to help raise awareness for Epidermolysis Bullosa, my son’s rare skin disorder. Here’s 10 things this EB mom wants you to know… 1. Yes, it might looks like we have it all...
New episode of Butterfly Talk ready to view! October 15th is Pregnancy and Infant Loss Awareness Day (as a whole, the month of October is also). Why this day is so important to me and why it’s linked to EB Awareness. My story and several tips on coping. Butterfly Talk...
New episode of Butterfly Talk ready to view! In this episode I encourage all Mamas out there to take care of yourselves!! This includes Nutrition, Exercise, Sleep, Pamper Yourself and Your Mental health is also super-important!!! Butterfly Talk is a YouTube show where I talk mom to mom about different...
Just yesterday Model/Author Chrissy Teigen posted something on her Instagram account that blew me away. Her loss. Her Pregnancy Loss. The pictures were so devastating to look at, not because of the images per se, but for the memories they brought back in my mind from my loss, long ago....
New episode of Butterfly Talk ready to view! In this episode I talk about the Healing Power of Humor. I’ve used it a lot with Nicky and also my husband. We try to laugh as much as we can. It helps!! Butterfly Talk is a YouTube show where I talk...
The passing of Ruth Bader Ginsburg got me blogging again. She was one of those pioneers for women that will be hard to replace, most especially on the Supreme Court. For what it seems like right now, her possible replacement is against everything she was for, which is sobering. It’s...
New episode of Butterfly Talk ready to view! In this episode I talk about the bandages and miscellaneous products that we use to take care of Nicky’s wounds and well-being.Butterfly Talk is a YouTube show where I talk mom to mom about different aspects of coping and celebrating our amazing...
I came across this quote a while back and it kinda just “hit me” in the gut. “The most destructive thing I’ve ever done is believe someone else’s opinion of me” I’ve been doing a lot of thinking about this quote… How many times, in our lives, people put us...
What I am watching I have to be honest, the last thing I wanted to do this summer was sitting in front of the TV and watch endless shows. I should be in Italy right now visiting my family. I was supposed to take my kids camping, and I wanted...
The Mark White Show · The MFH Good Deed Segment: Epidermolysis Bullosa Awareness with Silvia Corradin A Big Thank YOU to Mark White for Helping us spread EB Awareness! Love & Light, Post Views: 2,107
Just recently the EB community lost two RDEB teenage souls and my heart broke. This is the same exact diagnose as my son’s, so when this happens I always wonder when will that happen for him. Tomorrow? Next year? 5? 10? The future is scary. It’s unthinkable. It’s something I...
New episode of Butterfly Talk ready to view! In this episode I talk about depression. Special Needs moms cope with long-time depression. This ongoing type of depression is very different from other forms of depression…Butterfly Talk is a YouTube show where I talk mom to mom about different aspects of...
November 2014 – What an awesome memory!! We met Nick Vujicic in Ventura during one of his events and it was amazing. Nick had invited Nicky after he saw him on a news piece. What an inspiration! More of Nicky’s life in the book: http://www.butterflychildamothersjourney.com/ Post Views: 1,746
