Silvia

December 29, 2019

Nicky’s Life Part 74

Halloween 2002! Nicky loved Barney! Here he was almost 6 years old  More of Nicky’s life in the book –> http://www.butterflychildamothersjourney.com/ Post Views: 1,026

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December 12, 2019

Life with EB

I was thinking this morning about my conversation with Nicky that I had a few years ago while we were changing bandages… I told him how hard it was to wrap his wrist and that if only he could try to straighten it once a day it would not be...

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November 22, 2019

Nicky Makes The News :-)

Thanks to the Italian Consulate of Los Angeles Nicky was able to have a day where a Professional Chef gave him a private cooking lesson. The Chef is Michelin Star recipient Luigi Fineo – who is the head chef of N10 Los Angeles, a fine restaurant owned by famed Italian...

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November 13, 2019

What I’m Into {Fall 2019 Edition}

What I am watching I’ve always wanted to watch “Le Miserables”, but that whole musical adaptation thing… I just could not watch it. I tried, trust me, but I could not do it. I guess because I grew up with musicals being ‘happy and fun’ stories, a musical of a...

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November 7, 2019

Epidermolysis Bullosa is Hard

I just realized it’s been a while since I last posted a blog. I am not sure why that is, only that at times my life is not exactly “busier”, just dispassionate about things that I know make me feel better. I do have an excuse, however, I did go...

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September 17, 2019

Special Need Parenting Depression: The Struggle is Real

I was inspired to record a video about how my coping techniques are for Depression as a Special Need Mom. Depression is NOT a bad thing, it’s natural. We wouldn’t be humans if we didn’t feel sad or hurt over our children’s suffering. But we have to rise above it...

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September 12, 2019

Nicky’s Life Part 73

Nicky’s first Halloween! October 1997 – Nicky was my little Pooh Bear! More of Nicky’s life in the book –> http://www.butterflychildamothersjourney.com/ Post Views: 1,302

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August 29, 2019

The Magic of Books

This year I am on track to read about 40 books. I read 30 so far. Surely some are tiny quote books, but several are much longer, thick books. I am not sure if I am trying to avoid reality or just wanting to fill my time with things I...

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August 16, 2019

Where is the cure?

I was worried about Nicky yesterday and I told him so. It seems as if lately he sleeps as much as 18 hours a day! He doesn’t do that every day (his normal is about 12), but he has done this at least 3 times this week-and he told me...

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August 14, 2019

What I’m Into {Summer 2019 Edition}

What I am watching The fact that I was going to watch The Spanish Princess on STARZ was a given! This is basically the “sequel” to “The White Queen” (about the life of Elizabeth Woodwille, wife of Edward IV) and “The White Princess” (about the life of Elizabeth of York,...

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July 24, 2019

Nicky Update: July 2019

I will try to update this blog on Nicky every now and again, and I felt it was important to start now because, even though he’s finally improving greatly from his 6 months ordeal, there are things that have deteriorated from him spending a significant amount of time not being...

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July 23, 2019

Nicky’s Life Part 72

October 1999 – Nicky’s first official visit to the Pumpkin Patch! He was almost 3 years old. More of Nicky’s life in the book –> http://www.butterflychildamothersjourney.com/ Post Views: 1,703

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