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Nicky loves and cherishes his hands, and wrapping them is as important to wrap for us as any other part of his body.
It’s just incomprehensible to me how this horrid disorder exists and it completely changes our view of life in ways we never knew we needed to know nor learn.
Not sure I mentioned lately how much I hate EB. There you have it. I hate EB.
This grief thing is just bizarre. I rarely think of Alex and cry anymore, good gosh, it has been nearly 20 years since his death, but sometimes feelings resurface and I am a mess. It is what it is, I guess. It’s “okay” I tell myself. I am human.
Most people don’t realize how blessed they are. They look to their problems instead of their luck.
Everyone should be able to die with more memories than dreams.
Love & Light,