It’s EB Awareness week and I wanted something to illustrate EB without being “graphic”, so I decided to read an excerpt from my book, “Butterfly Child“. This is the beginning of Chapter 4, when we took Nicky home from the hospital. Here I describe the first month of having Nicky home and our challenges and learning curve. It’s truly quite descriptive. If you wanted anyone to learn about what it’s like to have an EB baby, this is what youRead More →

I know everyone likes Amazon, but if you knew how big of a cut they get, you’d be surprised! Hence, unless you’re downloading the eBooks for the Kindle, the best deals can be found directly from the publisher. So, here’s the scoop on the best deals for my books! eBooks Kindle is the way to go for my eBooks! Living with Epidermolysis Bullosa & Special Mommy Chronicles are only $2.99!! Losing Alex is also $2.99 and for Prime Members you canRead More →

I just updated Nicky’s Caringbridge Blog this morning…. Thank you for your support and thank you for allowing me to vent. http://www.caringbridge.org/visit/nickyz MORE NEWS! The Audiobook of Losing Alex​ will be available shortly. It’s so exciting for me! Also, I was able to lower the cost of my book Butterfly Child – A Mother’s Journey​ to $14.97 if purchased through the publisher. I can’t do nothing about the price charged by Amazon or B&N though, sorry. That is totally outRead More →

My new giveaway for my book “Butterfly Child” is now live! Enter for a chance to one 1 of 2 Autographed copies! Autographed by both Nicky and I nonetheless!! Here’s the link! –> https://www.goodreads.com/giveaway/show/150684-butterfly-child Thank you so much for your support… and if you have already a copy, please consider leaving a review! Much love <3 Post Views: 226Read More →

This is part 8 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising my son with RDEB (Recessive Dystrophic Epidermolysis Bullosa) called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was going on at the time or explaining things about the picture per se. This “picture commentary” will serve as a companion for anyone that is kind enough to purchase and readRead More →

This is part 7 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising my son with RDEB (Recessive Dystrophic Epidermolysis Bullosa) called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was going on at the time or explaining things about the picture per se. This “picture commentary” will serve as a companion for anyone that is kind enough to purchase andRead More →