Blog / Nicky's Life · June 4, 2015

Nicky’s Life Part 4

nicky_skThis is part 4 of an infinite series of photos I am posting on the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child. I am posting a few images from Nicky’s life and commenting on either what was going on at the time or explaining things about the picture per se.

This “picture commentary” will serve as a companion for anyone that is kind enough to purchase and read my book as my appreciation and thanks.

June 1998 – Nicky on my parent’s balcony in Italy. I was meticulous in keeping his skin covered to prevent new blisters and I used to always try hard to keep his hands protected by putting these gloves on. By then he had permanently lost all his nails, but the gloves didn’t prevent the scarring that would cause the webbing and contracting of the fingers. I just didn’t know any better back then.

Here’s the link on where to purchase the book if interested:

Love & Light,



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