A Mother's Journey
My heartfelt book, Losing Alex, which I wrote after the loss of my first baby, Alex, who was stillborn at full term, is now officially an AudioBook and I couldn't be more proud and humbled by the amazing voice of Marsha Waterbury, for lending her talents for my story.
Success means many different things to many different people. Some people associate success with money, tons of money. Some people associate success with having things, lots of things. Some people associate success with having a glorious career, or even fame. I used to think that way too. I worked hard...
July 2000 – Nicky was 3.5 years old in this adorable photo of him hugging Barney in our home in California City. By then I had already started wrapping his whole body as much as I could for protection. I hadn’t yet started wrapping with padding to prevent his itching,...
June 2009 – Nicky at Camp Wonder! He was about to get on the “Dryers” bus with several other boys from his cabin, many with EB like him, which took him to the Oakland A’s baseball game. This picture makes me smile. Totally “Nicky”!!! More of Nicky’s story in the...
Sometimes explaining EB and/or my life it’s exhausting. People that truly ought to know better, surprise me with their selfishness, with their eagerness to let me know “they have it bad too”, even though, when the chips are down, they wouldn’t trade their life nor their child with mine in...
Just recently a huge gift was bestowed upon me. The gift of no co-pays for Nicky’s supplies. This is no $20 co-pay, this should have been in the hundreds, even thousands (supplies come with a 30% co-pay), making taking care of Nicky almost impossible to afford. This was all in...
June 2005 – This is a very special photo for me because it has all my three boys together, in the only way they can be together. I have this one framed in the house. Because Alex is buried in Arizona (at the Queen of Heaven Cemetery in Mesa), I...
I am always looking for ways to take my mind off things, so coming across the many “Italian Girl Problems” memes is always a hoot for me. These are not exactly problems, are they? Just some fun stuff to put a smile on my face. While I can’t relate to...
Somehow, someway, life’s challenges and hardships help us evolve as human beings in a variety of ways. Having had hardships myself, and in turn, having met many moms who are disabled, or had to bury their children, or had children with profound disabilities, gave me an opportunity to learn compassion and...
So many things happened these past few weeks that made me wonder about a myriad of issues. I start every morning with a good dose of “positive”, “funny”, “loving” or “inspirational” images I post on my sleepingangel Facebook page. Why do I do that? Because it helps me start the...
Hello everyone! I just updated Nicky’s CaringBridge Blog with some info on upcoming trials for those interested with links etc. You do have to create an account to access it, but please know it’s free. I do try to keep sensitive information regarding Nicky’s health on that blog only because...
Fall 2004 – This is actually a quite famous photo of Nicky, I used it for all kinds of things, LOL. It was taken at CHLA (Children’s Hospital Los Angeles) after the first round of iron infusions were over. He was soooo happy!!! It cracked me up. Just a few...
As a parent of a Special Needs child, I must say that my biggest challenge to overcome is feeling trapped. The feeling of being a caged bird. Mind you, this is not often. Most of the time I am perfectly fine in my role and over the years I’ve come...
