August 2013 – Nicky right after he woke up from his hand surgery at CHLA with his dad. It always amazed me how strong he is. He wanted this surgery and it ended up to be really good for him in the long run as well. We use a splint to keep the thumb “out” at night and even after 3.5 years using that with the wrapping he lost very minimal web space. Of course his hands are far from normal looking, but he can use them, which it’s huge in my book. He truly cherishes his hands, so we’ll keep doing what we’re doing!
More of Nicky’s story in the book… Thank you so much for your support!!
http://butterflychildamothersjourney.com
Love & Light,