December 29, 2019
Nicky’s Life Part 74
Halloween 2002! Nicky loved Barney! Here he was almost 6 years old More of Nicky’s life in the book –> http://www.butterflychildamothersjourney.com/ Post Views: 1,619
December 12, 2019
Life with EB
I was thinking this morning about my conversation with Nicky that I had a few years ago while we were changing bandages… I told him how hard it was to wrap his wrist and that if only he could try to straighten it once a day it would not be...
December 1, 2019
November 22, 2019
Nicky Makes The News :-)
Thanks to the Italian Consulate of Los Angeles Nicky was able to have a day where a Professional Chef gave him a private cooking lesson. The Chef is Michelin Star recipient Luigi Fineo – who is the head chef of N10 Los Angeles, a fine restaurant owned by famed Italian...
November 13, 2019
What I’m Into {Fall 2019 Edition}
What I am watching I’ve always wanted to watch “Le Miserables”, but that whole musical adaptation thing… I just could not watch it. I tried, trust me, but I could not do it. I guess because I grew up with musicals being ‘happy and fun’ stories, a musical of a...
November 7, 2019
Epidermolysis Bullosa is Hard
I just realized it’s been a while since I last posted a blog. I am not sure why that is, only that at times my life is not exactly “busier”, just dispassionate about things that I know make me feel better. I do have an excuse, however, I did go...
September 17, 2019
Special Need Parenting Depression: The Struggle is Real
I was inspired to record a video about how my coping techniques are for Depression as a Special Need Mom. Depression is NOT a bad thing, it’s natural. We wouldn’t be humans if we didn’t feel sad or hurt over our children’s suffering. But we have to rise above it...
September 12, 2019
Nicky’s Life Part 73
Nicky’s first Halloween! October 1997 – Nicky was my little Pooh Bear! More of Nicky’s life in the book –> http://www.butterflychildamothersjourney.com/ Post Views: 1,807
August 29, 2019
The Magic of Books
This year I am on track to read about 40 books. I read 30 so far. Surely some are tiny quote books, but several are much longer, thick books. I am not sure if I am trying to avoid reality or just wanting to fill my time with things I...
August 21, 2019
August 16, 2019
Where is the cure?
I was worried about Nicky yesterday and I told him so. It seems as if lately he sleeps as much as 18 hours a day! He doesn’t do that every day (his normal is about 12), but he has done this at least 3 times this week-and he told me...
August 14, 2019
What I’m Into {Summer 2019 Edition}
What I am watching The fact that I was going to watch The Spanish Princess on STARZ was a given! This is basically the “sequel” to “The White Queen” (about the life of Elizabeth Woodwille, wife of Edward IV) and “The White Princess” (about the life of Elizabeth of York,...
July 24, 2019
Nicky Update: July 2019
I will try to update this blog on Nicky every now and again, and I felt it was important to start now because, even though he’s finally improving greatly from his 6 months ordeal, there are things that have deteriorated from him spending a significant amount of time not being...
July 23, 2019
Nicky’s Life Part 72
October 1999 – Nicky’s first official visit to the Pumpkin Patch! He was almost 3 years old. More of Nicky’s life in the book –> http://www.butterflychildamothersjourney.com/ Post Views: 2,641