Nicky in Kindergarten, late 2001 – Kindergarten was only “half day” so school started a little after 8am and ended at 11am. The teacher suggested him coming in on Tuesday/Thursday only to get used to it, and if he could handle it, then he could come every day. This was all fine and dandy, but how was I going to just “drop him off”? I had written an extensive sheet of “what to do in case…” for the teacher and the staff, but still, nobody here knew anything about EB, so I resolved this issue by starting to go to school with him and kind of “hang out” in the background, helping him if he needed me. The school later hired an Aide to be with him.
This was the first time since Nicky was born that I actually dropped him off anywhere and felt good about it! Of course I still came by for several days to make sure the Aide could understand everything there was to know about EB, but this little bit of freedom did wonders for me and him.
More of Nicky’s story in the book… Thank you so much for your support!!
Love & Light,