I remember vividly being pregnant with my first baby, Alex. Finally my dream of becoming a mom was coming true. I waited an elated 9 months for his arrival, and on the day after he was due we found out he had died in utero. He was stillborn 2 days later. Seven months after that unthinkable loss I miscarried a baby girl at 8 weeks. Thirteen months after that I finally held Nicky. He was a bundle of warmth that felt like heaven. After that initial bliss we found out he had EB, and everything else was a blur. For the longest time I felt lower than low. I am not sure I felt ashamed per se, but I was definitely distressed about my story, I felt distraught, even tormented by the memories of holding my dead newborn and surely poking blisters on my precious new baby did not help myRead More →

I was talking to my cousin the other day and I asked him if he was as happy as I was to have grown up in a world without computers. He concurred. And while we were actually discussing life in general, the one thing that came to mind after our talk is how the internet has changed friendships and the relationships we have with people in general On one hand, it’s fabulous. I was able to find old friends from High School and any school I attended prior to that and we were able to re-kindle amazing friendships. I will forever be grateful for that. I am also happy to keep in touch with many family members and friends scattered all over the world. I was also fortunate enough to discover new friendships which lifts my spirit every day. Of course there is always a negative side… doesn’t everything have a negative sideRead More →