Blog

May 15, 2015

Nicky’s Life Part 2

On the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child, I started posting a few images from Nicky’s first years and commenting on either what was going on at the time or explaining things about the picture per...

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May 14, 2015

I am Beverly Goldberg

Nicky has a new favorite show as of late, it’s the 80s revival show titled “The Goldbergs” and when I asked him why he liked it so much (I know why I like it… it’s all that 80s stuff!) he told me it was because… well, Beverly Goldberg is me,...

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May 12, 2015

Nicky’s Life Part 1

On the Facebook page I have for the book I wrote about my journey raising a child with RDEB called Butterfly Child, I started posting a few images from Nicky’s first years and commenting on either what was going on at the time or explaining things about the picture per...

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May 11, 2015

Empathy Matters

I wrote about this subject before, but today I came across this website that made me laugh out loud… mainly because their message spoke to me. Take a peek at these sympathy cards by Emily McDowell, here’s one on the right —> It goes without saying that if I had...

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May 8, 2015

“Losing Alex” FREE for Mother’s Day

My book “Losing Alex” is FREE for Mother’s Day Weekend for the Kindle! It is roughly the first two chapters of Butterfly Child – A Mother’s Journey​ and it entails my journey of loss that proceeded Nicky’s birth. If you don’t have a Kindle it’s OK, Amazon has FREE Kindle...

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May 7, 2015

EB Sucks

I updated my Caringbridge Blog today (here’s the link–> http://www.caringbridge.org/visit/nickyz/journal/view/id/554ba814f02065dc3614f506) and I also posted a photo on my Butterfly Child Book Facebook Page and I talk about the pain and suffering that Nicky endures. It’s not easy. EB sucks. It’s been two years now since I had to start giving Nicky...

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May 4, 2015

The Importance of Family

I was 17 years old when I left Italy for what was supposed to be a 3-month stay with my aunt in New Mexico which ended up becoming permanent. I’m still here 33 years later. And while it was my choice to stay, many times I must admit, I miss...

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May 1, 2015

Win My Book “Butterfly Child”!

Happy May everyone! I have two autographed copies of my book “Butterfly Child” to give away! You can enter at Goodreads, which will take entries from now until May 31st and then randomly pick two winners on June 1st! Good Luck everyone!!! https://www.goodreads.com/giveaway/show/136270-butterfly-child Post Views: 2,210

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April 29, 2015

Cultural Reflections

Not too long ago I enjoyed watching a really amazing documentary on PBS called the “Italian Americans“, which told the tale of the plight of Italian immigrants and how they were treated and their contribution to American society. I wasn’t aware of this, but the unification of Italy in 1861,...

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April 21, 2015

Onions & Potatoes

Apparently the past 18 years I had my head completely in the sand. The cure for EB was in my cupboard! Who knew? Instead of putting fancy creams, or high tech bandaging and wound healing products, I should have just covered Nicky’s wounds with potato skins and cooked onions and...

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April 18, 2015

If Only I had a Delorean…

I think this is something we all wish-that a DeLorean was available for us to enter, we could turn on the time circuits, flick on the Flux Capacitor, and we could reach that 88-miles threshold to another place and time where we could change things… Summer 1984 is where I...

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April 17, 2015

This and That

So many things to talk about! 1. I have an AMAZON GIVEAWAY going on! if you haven’t already, please enter and share, you can win my book “Butterfly Child”. Who will be the lucky person??? The giveaway will be active until the 22nd, so I hope someone by then wins...

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April 12, 2015

Living for Today

I haven’t updated my blog in a little while-I am usually a chatterbox, I love to write and to me writing is therapeutic, but lately between my book release, Nicky’s extra trip to Stanford, Easter, Greg’s birthday and all I think I lost track of time. This next week I...

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March 28, 2015

“Butterfly Child” NOW AVAILABLE!!!

Good morning everyone!!! My book is now LIVE finally from the publisher’s website! Woot! Here’s some links for you! Paperback: The only way to get the book on paperback right this moment is through the publisher: http://www.lulu.com/…/butte…/paperback/product-22092004.html It will take a few weeks to “show up” on Amazon and Barnes...

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