Blog Quotes

It’s sad how people only become instinctively concerned when it’s one of their own. We need to become a more empathetic and compassionate society.
Before Nicky was born I was an absolute wimp, who could not watch my own blood being drawn. Amazing what we learn to do out of love for our children.
Every day since he was born I have had to evaluate the way I can help him without hurting him too much. I have had to balance the risks and benefits of everything I do to him. I have tried to make him part of every decision as early in his life as possible, giving him as much information as I could for whatever age he was in.
I give him the information and I let him make the decision. This has nothing to do with him not being brave enough to do certain trials or not, it’s him making decisions about his life only HE can make.
Once an area gets wounded, it’s much easier to wound again, the more it gets wounded, the more fragile it becomes.
Let me make this as clear as possible: all the good choices in the world would not have prevented my son’s condition. He should not have to prove his worth to you. He should not have to prove is right to exist to you.

Leave a Reply