What I am watching I was looking for something to binge on Netflix last month and after watching the first 15 minutes of 3 different shows, I landed on Alias Grace and it immediately grabbed me. Alias Grace takes place in Canada in the 1840s and beyond, and tells the story of Grace Marks, a young, poor Irish immigrant and domestic servant who finds herself accused and convicted of a double murder. The actress that plays the role is riveting,Read More →

Having hope sometimes is a gigantic challenge. A challenge so unsourmantable that it leaves you in tears and gives you sleepless nights. You cry. You scream. You fall asleep in tears. But then you wake up, dust yourself off and move forward, one day at a time. One hour at a time. Focusing on the present becomes imperative. One of the reasons why I have a hard time being part of support groups in general is because there are oftenRead More →

Because I am Italian, I’m always asked to give people recipes to make this and that. The truth is that aside the staples, I only learned to cook a variety of foods just recently, which includes a lot of Italian dishes and quite a bit of desserts. The reason why only recently? Because I worked too much beforehand. My ex-husband and I had separate shifts and hardly ever ate together. When I got remarried and I was my son’s fullRead More →

September 5, 2004 Connor’s first birthday was really fun for Nicky. He laughed and laughed seeing Connor destroy his mini-cake (which we got in purpose, LOL)! After I gave Connor a bath we continued the celebration with present opening. Connor at 1 was a little doll. Nicky just adored him. You can feel the connection just looking at this picture! They are still extremely close today and always will. Their bond is unbreakable. More in the book –> http://www.butterflychildamothersjourney.com  Read More →

Wayne Dyer once said: “How people treat you is their karma; how you react is yours.” I wrote in the book Butterfly Child about me being the proverbial “punching bag” for the EB community when I used to run the various EB groups over a decade ago. In the book I go in detail about certain individuals, who shall remain nameless, who felt it was perfectly okay to harass me over and over again. One would write me a nastyRead More →

Sometimes, when I sit down and think about it, I forget that the kind of stuff we deal with on a daily basis isn’t normal for most people. I forget, because after 20 years, they are normal for us, and even though I have a healthy child to remind me of the opposite, I choose to just live my day without comparing. Do not let anyone tell you that is foolish to have hope. It’s what keeps me going. HopeRead More →

A couple of years ago, in the name of being “supportive” in regards to Nicky (or so he claimed), someone told me “At least he’s not dead”. Apparently this individual had lost two cousins to some condition he did not identify and that was the reason for his statement. When I was outraged and said “gee, thanks!”, he did not apologize, either. He didn’t think he anything to apologize for, imagine that. It was certainly not the first time someoneRead More →

What I am watching Just before I left for my trip to Stanford for Nicky’s surgery I finished watching the 2nd and, may I say, glorious, season of Victoria. Because I was enthralled by the Olympics and busy watching Downton Abbey every spare moment, I taped all the episodes that aired on PBS in January and February and then I binged. I love binging!!! I find myself going to Wikipedia to learn more about this person or that person orRead More →