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Nicky in the end is my ultimate teacher. It’s because of his lack of bitterness, lack of hate, lack of negative thoughts, that I am becoming a better person.

I would love a weekend away with my husband to feel like a wife and a woman, but an EB trained nurse to provide child care is nonexistent. I made peace with that.

Being compared to others does something to our self-esteem that is extremely damaging..

I don’t particularly enjoy seeing him in more pain, but he has decided long ago that having his hand somewhat functional is vital and important to him is worth the pain.

Make sure your advice is wanted and asked for. It may seem common courtesy, but advice only works if there is a willing and receiving ear.

Love & Light,

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